Wednesday, December 21, 2016

Bear One Another's Burdens: Galatians 6:2

12-19-18  Bear One Another's Burdens: Galatians 6:2


Here is the link to Kaylas GO FUND ME

You can also go to any 5/3rd and contribute to the Kayla Breadon account.


So the last few day have been a flurry of planning and waiting and deep breathes.  Then yesterday I got this message in my email and went into a *little* panic....



27 days!  26 now since I did not get this blog out yesterday!  Cassie has been working full time and trying to plan this amazon of a trip during her 45 minute lunch break.  Making calls to the doctors office in New York, the Cincy pediatrician, the Cincy ophthalmologist, the Cincy Children's Doctor, all trying to coordinate the treatment so we are all on the same page.  


None of this craziness seems to be affecting the Courageous Kayla!

Then there is the big elephant in the room, paying for all of this!  Cassie works full time and is blessed to have a very good insurance policy with the City of Florence, KY.  We believe (hope, pray) that her insurance will cover the entire surgery and subsequent 7 day stay, but no one has been assured of this yet.  Cassie met her deductible months ago and it 'resets' again in July.   The downside is her sick and vacation time also ran out months ago also with her maternity leave and Kayla's appointments, its been a busy 10 months!  There was some discussion to wait until July so Cassie could take more paid time off to be with Kayla during her recovery but with the Amblyopia threatening Kayla's vision Kayla's doctors decided that waiting is not an option.


This leaves the travel, stay, incidentals and time off as a major financial burden for Cassie and Sean, who both work full time to support their family of 5.  That is where my panic set in.  It had become clear that we need some help.  We have 26 days to prepare Kayla, Cassie and Sean for the surgery that will hopefully change her life forever, and we need some help to get there.  We have decided to reach out to family, friends and the community to get some help.

My daughter, Anna, found this and sent it to me as guidance.
Here is the link to Kaylas GO FUND ME
You can also go to any 5/3rd and contribute to the Kayla Breadon account.

So here is where we are now as of today.... Flights have already been paid for by Cassie's family.  Cassie and Sean are booked on Allegient to New York on January 16 for the consultation on January 17.  The surgery is on January 18.  The New York Doctors want Kayla to stay until the following Wednesday January 25.  Cassie and Sean are on the wait list for the Ronald McDonald House but in the meantime we have booked them into a hotel within walking distance to the Lennox Hospital and the Vascular Birthmark Institute on 64th street. Mom and Dad will travel to New York on Saturday the 21st to help with getting Kayla home and settled in.  If everything goes as planned, Cassie will need to be with Kayla at least one additional week after returning home.  This leaves her with 3 weeks of missed work.  Sean will miss at least one week.  Doing all the math and keeping fiscal responsibility in mind we believe we will need at least $4,000 to ease the non-covered related expenses. 


Carter, Sean, Cassie, Kayla and Ethan!

So this week we began a Go Fund Me account and opened a 5/3rd account to collect donations for this effort.  If you are able to donate or share to help with this please do!  This is not an easy thing for any of us to ask for, and we appreciate everyones prayers, concerns and messages!

Cassie and Sean have not said too much about Kayla's condition.  She has not posted many pictures of Kayla due to the well intentioned questions that come with photos... She is basically very overwhelmed right now and has mixed feelings about asking for financial help, but here is a message she posted yesterday...

I know I have not said much since Kayla was born about her lymphatic malformation. I was praying the doctors were right when they said it was just fluid. After many tests and no forward progress we looked for another answer. We made the decision to take the trip to New York to keep Kayla in good hands. We are praying to have the lymphatic malformation removed. Dr. Waner has preformed miracles on many children. I can only pray Kayla will be the next miracle. I want to thank everyone for your support. Your prayers are the most important. They mean so much to all of us!   Gratefully, Cassie, Sean, Ethan, Carter and Kayla


Here is the link to Kaylas GO FUND ME
You can also go to any 5/3rd and contribute to the Kayla Breadon account.

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